Random thoughts

Today we went back to Dr. Parks (Chiropractor) and found out that we didn’t get the loan financing that we needed to proceed with the decompression treatments. So I guess right now we are at a stand still. We need to find a way to get the money we need for this treatment as for the moment it seems like the only thing that looks like it can help him. At least for now the adjustments he is getting are helping a bit so it isn’t all lost.

We took with us today the EMG report from UC Davis. This is the test that uses electrical current to test the neuro pathways etc. He is looking this over to see what he thinks. It is interesting to see that the neurologist wrote a very non committal report. While he said that the findings suggest ALS he also said that his cervical, lumbar and cranial issues couldn’t be overlooked. Yet he failed to mention these things to us. He said that Scott’s spine was normal and it is clear that this is far from the case. So we move forward trying to put the pieces together from this crazy puzzle.

It is hard to believe that the summer is half over. This will be the first summer I can remember that we are not going camping. Maybe we will squeeze in a trip before the summer is over. I feel like our whole world has been turned upside down. We are having a pretty good summer though in a lot of ways. It has been nice to have Scott home. The boys and him have been going to the pool and the library and different things together and they love getting to spend time with him.

I have been getting lots of time in the garden. I am still a bit off on my sleep schedule and need to re arrange things so that I can get out more for my runs. I don’t want to slip backwards after all the work I did last year getting to where I am. It would probably be a good idea to register for a race just to give me something to work towards. Part of me would rather just sleep in, to be honest.

I met a lady today whose daughter was dying of a rare form of cancer. The story she told me was just really sad, I guess it isn’t a type of cancer that responds to chemotherapy or radiation or any of the normal drugs they treat cancer with. It just reinforced in me that feeling that each day is just so important to love the people in your life and live each day to the fullest. Being present to today and now is so important. No one knows what will happen tomorrow. It is a good lesson for everyone.

Her story really struck me because I guess her daughter had had a hysterectomy in 2009 for fibroids and then found out in May this year that she had these tumors and this rare form of cancer. Then found out just recently when another doctor pulled her records that she had had this cancer when she had the hysterectomy but that the doctors didn’t tell her and though the records say that they recommended further treatment she was never told. I just have such a hard time with how the medical facilities do not connect the dots. The doctors we have dealt with have not only neglected to look at medical history but failed to read the results of tests and then they have gone on to jump to conclusions without further looking into things that need to be looked into. How many people out there are going through similar things?

She told me about a lady that had MS who was confined to a wheel chair. This lady had heard that a doctor in Poland was curing people with MS and so she went there even though she didn’t speak the language and just had full trust of the doctors to help her. I guess they opened up some neuro passageway or something in her neck and she walked out of the clinic. Why does the US run the way it does in terms of health care? It is all about the pharmacies. It needs to change.

Again just feeling so much gratitude for all the love that keeps pouring in. I could not do this without all the support from everyone and it comes in so many different forms and I recognize them all. Much love to all of you who show up and love us. Namaste